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What is the role of parents when their children with autism grow up?

Raquel Montllor Linares
Raquel Montllor Linares
Mental health activist

This is a very interesting question... autism has usually been associated with childhood and adolescence, as if everything would be resolved when you turn 18. This is not the case. We grow and age, of course, but so do our parents and caregivers.

However, we must remember that there are people with autism, myself included, who have managed to build families. I mean, we may have our problems, but if our parents are no longer our main support, our partners can be.

Even so, in more severe or dependent cases than mine, I understand that it can be very difficult for caregivers to look after a person with special needs as they age. And I mean this both emotionally and financially, for example. That said, some ways they can support their children include expanding their support networks with friends, family, support groups, and so on . It's also important for parents to plan for the future of their adult child with autism in case they are unable to care for them in the future. This may involve seeking a legal guardian for their child.

In any case, aspects such as establishing routines and clear boundaries can be helpful not only in childhood but also in adulthood. And of course, don't forget to teach your child to be independent: cooking, cleaning, etc. Finally, remember that it's very important for caregivers to take care of themselves as well.

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Dra. Elena Huerta Ramos
Dr. Elena Huerta Ramos
Clinical neuropsychologist and postdoctoral researcher
Parc Sanitari Sant Joan de Déu
Raquel Montllor Linares
Raquel Montllor Linares
Mental health activist